Austerman Family: Important Information - Medical Foods Equity Act
This federal bill would require all health insurance companies, including federal plans, to cover the cost of medical foods (formula and foods modified to be low in protein) for life for all people with PKU. ... Explain why the legislation is needed. Although the Newborn Screening Saves Lives Act requires states to screen for PKU, there is not adequate coverage for the required treatment. 38 states have laws governing medical foods, but they are inconsistent and many ... Read more
WashingtonWatch.com - S. 2766, The Medical Foods Equity Act of 2009
I'm a 24 yr old with PKU and I am in full support of this bill. My employer only offers a "self-insured" plan which is exempt from state laws requiring coverage of formula and foods. This makes it difficult to manage the disorder and the results can lead to attention ... The fact that we have to enact legislation to force insurance companies to do the right thing is a travesty. People with IEM's must have special formulas or die. It's not negotiable. The bill MUST pass. ... Read more
WashingtonWatch.com - H.R. 4926, The Medical Foods Equity Act of 2010
I'm a 24 yr old with PKU and I am in full support of this bill. My employer only offers a "self-insured" plan which is exempt from state laws requiring coverage of formula and foods. This makes it difficult to manage the disorder and the ... We live in Arizona, and there is Az state law requiring the insurance company to cover the medical food, but they have denied each and every claim. We need federal legislation to force the insurance companies to provide coverage. ... Read more
PKU Legislation
I am an adult living with PKU in Illinois, and currently there is no insurance/state assistance with the high costs of low protein medical foods. I have seen that this is a disturbing trend across the entire country. ... Read more
